Recruitment for this study is closed. This study is being conducted by researchers from the Department of Psychology at the University of Sheffield. If your confidence in social situations is affected by your visible skin…
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What to expect ISG Children’s Activity Camps are friendly residential weekends, and we usually hold 2 a year somewhere in the UK, often in the summer or autumn months. Children aged 8–16 years affected by…
The Ichthyosis Support Group (ISG) proudly attended the British Association of Dermatologists Annual Conference (BAD2025) – one of the most important events in the dermatology calendar every July. Joining Mandy, our Medical and Communications Manager…
Update 2012 We have finished the project and published it recently in the highly renowned international scientific journal Journal of Cell Science (L. Wallace, L. Roberts-Thompson, J. Reichelt. 2012. Deletion of K1/K10 does not impair…
In 2018 we surveyed our members to learn if they would support the ISG funding a British Paediatric Surveillance Unit (BPSU) study for Collodion and Harlequin babies. The vast majority agreed but actually as it…
The Ichthyosis Support Group (ISG) won ‘Team Of The Year 2014’ Award. It was awarded after attending the BDNG’s 3-day conference talking to dermatologists, registrars, dermatology nurses and others about ichthyosis, living with ichthyosis and…
BPSU Study – Results of a national research study of newborn babies with collodion membrane. International guidelines for babies born with collodion membrane (CM) or harlequin ichthyosis (HI) recommend intensive care in a high-humidity incubator.…
