My name is Chantell. I live in a small community in Fort Nelson B.C, not a very big town for sure but the people are friendly and we call it our home. 17 years ago…
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Brave Ellie Luther gives a big smile to show just what a little fighter she is As the five-year-old plays in her garden, she’s blissfully unaware she has a one-in-a-million skin condition which could kill…
Anna’s story: Having ichthyosis has affected my day to day life as I’ve never been very confident as a result of constantly getting weird looks and a lot of staring but I’ve gotten used to…
A new exciting research paper has been published and the abstract is below. X-linked ichthyosis (XLI) is a rare X-linked dermatological condition arising from deficiency for the enzyme steroid sulfatase (STS). STS is normally expressed…
Mandy Aldwin, Founder Trustee of the ISG and patient representative BADGEM Clinical and Diagnostic Signposting subgroup Introduction: The Ichthyosis Support Group (ISG) conducted an anonymous survey of its members as part of the work of…
2022 is the ISG’s 25th Anniversary Year and to celebrate this we are aiming to raise a minimum of £25,000, and we need your help! Could you donate £25 or sign up to give £2.50…
We are a team of researchers based at Newcastle University. We are using different techniques to understand ichthyoses from the laboratory to ‘big-data’. One area we think is really important to develop is the who,…
Here’s our A-Z of ideas of ways you can fundraise A Auction of Promises, Ask for Donations Ask friends, family or colleagues to donate a promise of their time i.e. decorating, gardening, cleaning, ironing etc.,…
