2011 Ichthyosis Support Group/British Skin Foundation Small Grant The Ichthyosis Support Group (ISG) was delighted to team up with the British Skin Foundation (BSF) to award a joint grant of £10,000 for 2011 towards research…
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Medical and neurobehavioural phenotypes in carriers of X-linked ichthyosis-associated genetic deletions in the UK Biobank A new (March 2020) paper on medical, behavioural/mental health and brain symptoms in middle-aged male and female carriers of XLI-associated…
Recruitment for this research is now closed. Researchers at Cardiff University are looking for female carriers of genetic changes associated with X-linked ichthyosis (XLI) to take part in a short online survey looking at personality…
Recruitment to this study is closed. Researchers are looking for males with X linked ichthyosis or their non affected brothers to take part in a short online survey looking at personality. We are currently trying…
Understanding why ichthyosis skin is scaly Update 2010 In Lamellar ichthyosis, skin structure can be compromised, like a defective brick wall, and this sends signals to the skin making cells divide more quickly, resulting in…
A Dermatologist’s Perspective for People and Families Living with Ichthyosis If you or your child has ichthyosis, long waits for dermatology referrals or appointments can be frustrating and worrying. Dermatologists understand how vital specialist care…
We know the ichthyoses are a group of rare genetic skin conditions characterised by extremely dry scaly skin and that there are over 30 different types. All types of ichthyosis can have a psychological impact…
Recruitment to his study is closed Exploring Experiences of Visible Difference, Intimacy and Intimate Relationships Researchers at the Centre for Appearance Research at the University of the West of England are conducting a new research…
You must be a member and register in advance to attend any of our events. Dates for all types of events will be announced, so please keep an eye on your emails for more details,…
Recruitment to this study is closed. Genotype-Phenotype Correlation in Autosomal Recessive Congenital Ichthyosis We hope to answer your questions through our new research study entitled: The UK rare disease research database for autosomal recessive congenital…
