Participate in research

Recruitment to his study is closed Exploring Experiences of Visible Difference, Intimacy and Intimate Relationships Researchers at the Centre for Appearance Research at the University of the West of England are conducting a new research…

Recruitment to this study is closed. Researchers are looking for males with X linked ichthyosis or their non affected brothers to take part in a short online survey looking at personality. We are currently trying…

Recruitment for this research is now closed. Researchers at Cardiff University are looking for female carriers of genetic changes associated with X-linked ichthyosis (XLI) to take part in a short online survey looking at personality…

Recruitment to this study is now closed. For this study, a caregiver is anyone who provides daily care over what is ‘typical’ for a child. She would prefer that the development of this assessment tool…

Update March 2020 Have you had a confirmed diagnosis of Lamellar ichthyosis? Are you 18 or over? If you are a parent, is your child 12 or over? Does your Lamellar ichthyosis present with large…

Recruitment to this study is closed. Living with a skin condition is difficult, but how many people acknowledge the emotional and psychological impact it has on the person affected and their loved ones? Scott Thomas,…

Phaedra Longhurst is a postgraduate Masters (MSc) student at the University of South Wales. Phaedra is conducting a qualitative study which aims to explore people’s experience and their understanding of Body Image Dissatisfaction in association…

Recruitment for this study is closed. This study is being conducted by researchers from the Department of Psychology at the University of Sheffield. If your confidence in social situations is affected by your visible skin…

Do you have Ichthyosis vulgaris or are a male with X linked ichthyosis, or are a female carrier of X linked ichthyosis? Researchers at Cardiff University are conducting a survey into the experience of distress…