Help no family face ichthyosis alone.
The ISG receives no government funding and relies totally on the generosity of individuals, companies and grants.
- Registered charity 1142457
- Gift Aid adds 25%
- Stripe, PayPal and GoCardless
“When our Son was diagnosed with ichthyosis many years ago we didn’t know where to turn. The ISG provided us with both support and information to help us better understand the condition.”
Where your money goes
Big gifts, bigger change.
Giving as a company or a group? Here is what larger gifts can do.
£100
can fund 10 information packs for schools and families affected by ichthyosis, helping the child to attend school and manage their condition with the support of the school.
£250
can fund the provision of support, information and advice to 10 new families affected by ichthyosis. We are often contacted by parents of babies born with the condition that have nowhere else to turn; the support we provide gives them hope and reassurance.
£500
can support two families to attend our annual event, to meet, share experiences and learn from expert medical professionals.
£1,000
can fund five children affected by ichthyosis to attend an ISG residential camp, helping to gain greater confidence, increase self-esteem and interact with other children affected by ichthyosis.
£5,000
can help fund research projects. We have grants available to researchers undertaking research relevant to ichthyosis patients.
Other ways to give
Set up a fundraising page
The easiest way to get sponsorship from far and wide. The collecting is done for you, so no chasing up sponsors!
Give by post or phone
If you would like to send us a donation by post, please call us on 0800 368 9621.
Shop and raise money
easyfundraising, Give as you Live, eBay for Charity and the Unity Lottery all support the ISG.
Questions about giving
How does Gift Aid work?
Gift Aid lets charities reclaim basic rate tax on your gift. If you pay UK tax, every £10 you give is worth £12.50 to the ISG, at no extra cost to you. If you pay higher rate tax you can claim extra relief on your donations.
I have a question about a monthly gift
Call us on 0800 368 9621 or email isg@ichthyosis.org.uk and we’ll help.
Where does my money go?
The ISG is the only charity supporting those living with ichthyosis in the UK and Ireland. Your donation contributes to the support offered by the ISG and helps to fund research into these extremely rare conditions.
Can I send a donation by post?
Yes. Please call us on 0800 368 9621 for our postal address.