Member stories

Kevin

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I have just been diagnosed as having Ichythyosis X-Linked in the last few weeks. I am 46 years old man and have suffered since birth on my legs, arms and trunk; the worst by far…

1 October 2026

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Lesley

By adminMember storiesNo Comments

My name is Lesley and I was born in 1978 and live in Blairgowrie, Scotland. I was diagnosed with ichthyosis at birth and have Ichthyosis vulgaris (IV). My hands and feet are very dry and…

1 October 2026

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