Meet our current fundraisers

Have a browse through our current fundraisers where you can support someone by sponsoring them or make a donation towards their event. We have also included some past fundraising activities to give you inspiration.

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London Landmarks Half Marathon

Amanda Carcas

As many of you are aware, both my gorgeous children have the Rare Skin Condition called Ichthyosis, to raise money for the support group helps families like ours to meet other people, share experiences and raise vital funds for trials and medicine.

Nubah's Charity walk and car wash for the Ichthyosis Support Group

Charlotte Coakley

I’m organising this challenge/event to raise money for the Ichthyosis Support Group, a wonderful charity helping individuals and families living with ichthyosis, a rare genetic skin condition. This is the condition that a pupil in our 6th form has.

31 days of wearing RED to celebrate IAM

Kay Elizabeth

Since our gorgeous grandson was born just over 13 years ago we have relied on the ISG for support and have made lifelong friends as part of the ‘Ichthyfam’. Everyone with ichthyosis deserves this support!

We’re running Cheshire Half Marathon for the Ichthyosis Support Group

Amy Warburton

Leila's 30th Birthday fundraiser!

Leila Naboulsi

I’m raising money for the Ichthyosis Support Group, a wonderful charity helping individuals and families living with ichthyosis, a rare genetic skin condition.

Smiths running to fundraise for the Ichthyosis Support Group

Victoria Smith

We’re setting ourselves this challenge to raise money for the Ichthyosis Support Group, a wonderful charity helping individuals and families living with ichthyosis, a rare genetic skin condition.

Thames Bridges Trek 2023 25k for the Ichthyosis Support Group

Andy Jackson

Team ISG are taking part in the Thames Bridges Trek 2023 to raise awareness and funds for the Ichthyosis Support Group, which is a charity helping individuals and families living with all forms of Ichthyosis.

Miles for Smiles: Half Marathon for Ichthyosis Support

Ioannis Theocharopoulos

We—Ioannis, Ezer, Petros, and George—are running a half marathon to raise awareness and funds for Ichthyosis Support Group (ISG). Inspired by Ioannis work with Ichthyosis patients, we realized the importance of amplifying their voices, and supporting those affected, and so the idea of running a half marathon for ISG was born.

Many are unaware of ichthyosis, and we hope to change that by raising awareness, supporting those affected, and highlighting ISG’s vital work.

Gordon is running 'The Wall' Ultramarathon

Gordon Hale

I’m setting myself a challenge to run this classic 70 mile ultramarathon which follows the route of Hadrian’s Wall from Carlisle to Newcastle on June 14th 2025 to raise money for the Ichthyosis Support Group.

for the Ichthyosis Support Group

Fizah Nooreya Fatima Zaheer

My brother has ichthyosis and he attended a residential camp and we are forever grateful that he could see other children with his same condition

Afternoon Tea

amanda greenall

Raising funds to help support families who have a family member or friend with ichthyosis