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Visible Difference, Intimacy and Relationships

Visible Difference, Intimacy and Relationships

Recruitment to his study is closed Exploring Experiences of Visible Difference, Intimacy and Intimate Relationships Researchers at the Centre for…
1 October 2026
X linked ichthyosis personality survey

X linked ichthyosis personality survey

Recruitment to this study is closed. Researchers are looking for males with X linked ichthyosis or their non affected brothers…
1 October 2026
X Linked Ichthyosis Research – Female carriers wanted!

X Linked Ichthyosis Research – Female carriers wanted!

Recruitment for this research is now closed. Researchers at Cardiff University are looking for female carriers of genetic changes associated…
1 October 2026
Research Study for Ichthyosis Caregivers

Research Study for Ichthyosis Caregivers

Recruitment to this study is now closed. For this study, a caregiver is anyone who provides daily care over what…
1 October 2026
Lamellar ichthyosis research

Lamellar ichthyosis research

Update March 2020 Have you had a confirmed diagnosis of Lamellar ichthyosis? Are you 18 or over? If you are…
1 October 2026
Mental Health of Individuals With Facial Differences

Mental Health of Individuals With Facial Differences

Study Name: The role of attributions, shame, and self-compassion on the mental health of individuals with facial differences. About the…
1 October 2026
Emotional and Psychological effects of living with a skin condition

Emotional and Psychological effects of living with a skin condition

Recruitment to this study is closed. Living with a skin condition is difficult, but how many people acknowledge the emotional…
1 October 2026
Body Image Dissatisfaction

Body Image Dissatisfaction

Phaedra Longhurst is a postgraduate Masters (MSc) student at the University of South Wales. Phaedra is conducting a qualitative study…
1 October 2026
Does your skin condition affect your confidence?

Does your skin condition affect your confidence?

Recruitment for this study is closed. This study is being conducted by researchers from the Department of Psychology at the…
1 October 2026
A comparison of symptoms of distress and associated risk factors in XLI, IV and psoriasis

A comparison of symptoms of distress and associated risk factors in XLI, IV and psoriasis

Do you have Ichthyosis vulgaris or are a male with X linked ichthyosis, or are a female carrier of X…
1 October 2026
A Needs Assessment Tool for Caregivers of Children with Ichthyosis

A Needs Assessment Tool for Caregivers of Children with Ichthyosis

Research Notice: Validation of a needs assessment tool for caregivers of children with ichthyosis Carleen Walsh invites caregivers of children…
1 October 2026
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Ichthyosis and Epidermal Differentiation Disorders: What the New Term Means For You?

A guide to the new ichthyosis and palmoplantar keratoderma naming system – Epidermal Differentiation Disorders (EDDs) This article explains the recent changes in how we name…

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